Angelina Jolie Bashing ?

23 May

So I have gotten some flack about my re-posting of the “negative breast cancer blog” about Angelina Jolie and her news of her mastectomy. Well, honestly, just one person kind of tore my butt a little. The mastectomy community seems to stand, mostly, together stating that she glossed over her surgery and made it sound like a pedicure - a little. The comments on the original blog post were honestly heart wrenching and hard to read, I guess because I can sympathize with each woman who commented. I have also talked to non-cancer women and they got the same vibe from her story. Easy? Really?

I am thankful she has used her platform to shine a nice big bright light on the brca gene mutation and that she is proactive about taking care of what she feels was her best option to avoid cancer in the future. I also took that option, only mine was after the cancer came. I bought into the hopeful insurance policy that we all are hoping and praying continues to keep me, and my brca friends, safe from cancer #1 or safe from a recurrence. We all hope for the same thing, for every single woman who tests positive for the brca gene, to stay safe. I still believe she glossed over her mastectomy. This is a painful surgery and reconstruction is painful and uncomfortable for most. In fact, in all of my cancer interactions I do not know one woman who said it was easy and not painful.  The comments on the blog that I originally reposted were 99.9 percent in agreement. Even the women who just had the prophylactic surgery without having chemo or radiation. It is not a paper cut, nor is it having a cavity filled, or even comparable to a lumpectomy. I had a lumpectomy and a bilateral so my viewpoint is pretty clear. I also have an extremely high tolerance for pain. So….I ramble on. I am glad AJ had an easy time of it, if that’s the truth, and I am extremely thankful for the brca light she is shining, but I hope women out there do their research and ask lots of questions before diving into a bilateral mastectomy because they now “know” it’s an easy surgery…after all, Hollywood has spoken.

Do your research friends, get your brca test if it’s in your family and your physicians are recommending it, get genetic counseling, know your breasts, get your annual exams, and annual mammograms. Please do not bury your head in the sand, like I did, and wait for the cancer to come and then do your research. I could have possibly avoided my cancer battle had I just been proactive earlier in life and had my genetic test done and been ready and willing to make decisions with those test results. Instead, I stayed busy, and hoped the cancer wouldn’t come, even though deep down inside, I knew it would.

Be your own advocate, learn, research, ask questions, be proactive, talk to doctors, genetic counselors, and take the time to make your decisions before, like me, the decisions are made for you.

June 2, 2013 – Cancer Survivor Day

18 May

June 2, 2103

June 2, 2103

Was Angelina Jolie Being Honest About Her Mastectomy?

15 May

Reblogged from Tales of a 3 Time Breast Cancer Warrior:

Click to visit the original post

Every time I hear of a woman being diagnosed with breast cancer or testing positive for the BRCA gene, my heart sinks. I close my eyes and take in a deep breath and hold them in my heart, silently whispering the phrase Namaste (the light in me acknowledges the light in you). I feel all the way to the core of my soul what they are going through or what they are about to go through.

Read more… 401 more words

This post is from a fellow blogger. An honest fellow blogger. I honestly hope Angelina's news helps shine a light on brca positive phrophylactic surgery - but did she honestly say she was up and around in a few days? Did she just take the entire mastectomy process and cover it with Hollywood BS? Jeeze...

My Hour Long Speech at the NCSRT

14 May

I just realized that I never blogged about my speech at the NCSRT on April 11, 2013. There is really a lot to blog about that evening – not even counting the speech – so I must delay this blog a little more. What I can say is that the speech was fine, but I don’t think that was God’s purpose for my trip to Raleigh that day. I believe my purpose was to meet some of the people I met there, especially one woman who I will blog about soon.

There is exciting news coming from this introduction that has to do with cheering up breast cancer patients and fundraising at the same time. I knew, the morning after my speech, that there was a much bigger purpose for my visit to Raleigh, then to just offer an hour-long talk about my story that enabled radiologic technologists to receive CE credit for listening to me ramble. More on these details to follow!

I am back in physical therapy because all of my skin has locked down across my breasts and upper back and my poor upper body feels like I have a steel shirt on all of the time. I have been to two PT sessions with Peggy and I already feel so much better. Two sessions down and six more to go and I will be like new. If you need info on this specialized type of physical therapy for breast cancer patients, please comment on this blog and I will contact you.

I have also found out that I am being featured in a very cool way in June – more details to follow on that. I am always so grateful and humbled that people like hearing or reading parts of my story and that it continues to help others. You see, my diagnosis was March 1, 2011, but the blessings continue to be part of my life. Ah…those silver linings….

Sorry to be so vague but that’s all you all get for now – lots more blogging and cool details to follow in the next few weeks. :-)

A Mother’s Day Surprise – FOR MY KIDS !

12 May

So….did you read my last blog called Mother’s Day Already? If so, you will understand this blog post. If you haven’t – you will probably be confused. Last year my reverse Mother’s Day surprise for Morgan and Kyle was the hot air balloon ride over the blue ridge mountains. There the three of us were, floating along, amazed at the beauty of the blue ridge mountains from the air. It was so very quiet up there and serene. I don’t like heights but that balloon ride didn’t bother me and for some reason I was not scared or nervous. I was actually very very calm. I think that having cancer does that to you. After going through what cancer patients go through, nothing seems scary anymore, nothing seems too big or too daunting, at least that is what life feels like for me now. 

With that being said, for our reverse Mother’s Day celebration this year, I am throwing calm, serene, and quiet right out the window. I wanted to shake things up a little bit this year and have a bit more “bucket list” fun. The kids have decided that they want Kevin to come with us so he is invited also. We are staying in Charlotte this time and doing our surprise and then going out for a cool dinner or lunch – depending on what time our appointment is, and we are going in July again. Right near my birthday…I think this may be how our Mother’s Day surprises are going to unfold. I will give them for Mother’s Day but we will celebrate them closer to my birthday. Sounds pretty perfect doesn’t it?  

Morgan and Kyle, you guys are my heart and my spirit. You both have made me the proudest Mom ever with the adults you are now and the choices you have made. Thank you for giving me the best memories of my life. I cherish you both and cannot wait to celebrate many more reverse Mother’s Day celebrations with you.

This year we are going to Lowe’s Motor Speedway for a few hours. We will have short class on learning how to drive a race car and then we will each drive one. We each get to drive several warm up laps behind the pace car and then we are OFF. We get to wear official Nascar driving jumpsuits and we get to DRIVE the cars. No riding along for the four of us. We are throwing peace and serenity out the door for a few hours and buzzing around the racetrack at 90 mph. I think this will be a fun and memorable outing and I cannot wait to see you guys racing around the track. The question is, how am I going to take pictures of this event for my scrapbook while I am going 90 mph around the track?  Ha. I guess this one may go “unphotographed”.

Happy reverse Mother’s Day to the two best kids in the world, I cannot wait to do this driving experience with you guys in July, and Kevin - Happy Father’s Day to you !!!

Another one of my bucket list items – CHECK !

Mother’s Day – Already ???

10 May

As Mother’s Day approaches us once again, I felt compelled to re-post my blog from Mother’s Day 2011. For my new blog followers, this was in the beginning of my breast cancer battle, and I have made a promise to my kids that we are going to do something cool for Mother’s Day each year now. A reverse Mother’s Day. If you read my blog below, you will have a better understanding of what I mean. For my friends and blog followers from during my fight – you know that on Mother’s Day I will tell my kids about the cool thing we will do this year to celebrate our reverse Mother’s Day. This year we will celebrate it on July 21 and what we are doing is a surprise until Sunday. Last year we took a hot air balloon ride over the mountains in Asheville. That was a very cool day ! So, please stay tuned for Mother’s Day 2013, and you can read, right along with my kids, about the next adventure we will take to celebrate the two best kids in the whole wide world…..please read below from May 2011.

Today is a Mother’s Day, for me, like no other. I am constantly aware of my body and all it tells me every single minute of the day. What is hurting, what is healing, what I am eating and how it agrees with me (or not), am I touching my face, mouth, or eyes without having washed my hands ? It is exhausting, and a bit self-centered, but necessary as my white blood count continues to return to normal this week. I am also waiting and watching for my hair to fall out. This is the exact detail of my life today that makes me reflect back to Mother’s Day fifteen years ago.

Mother’s Day 1996. My brothers were in and out of the state visiting and caring for my Mom. Hospice was at my Mom’s house every day. My children were young and we were a very young busy family. My children did NOT want to go to their Grandmother’s house each day because they were constantly told to be quiet (Grandma’s sleeping), be calm (Grandma’s sick), stay inside, stay outside, dinner won’t be till later, stop going in and out….the small kid drama continued…

I believe my Mom was still coherent on Mother’s Day that year. She was beyond wearing head covers because she was so sick so we began seeing my Mom as the very sick, bald, dying woman that she was. My brothers were coming to town and bringing their kids sometimes too – so my kids thought some of those visits were a big family party. I remember during one dinner we kept hearing the kids outside the kitchen door laughing and this strange pinging sound. The sound continued on and on. My father finally got up to see what the kids were doing and then the yelling started. Our children ( I think there were 5 of them that day, all under the age of 5) were picking up handfuls of gravel from the driveway and tossing them at my Dad’s brand new Jeep Grand Cherokee. My Mom slept through it all.

Between Mother’s Day 1996 and Memorial Day 1996 were the longest days of my family’s life. My Mom had a bilateral mastectomy years ago, she had a blood clot in her groin so her leg died – it was cold and dark purple. She was very very sick and her mind had really started to do strange things because her breast cancer had moved to her liver. Her liver wasn’t functioning correctly anymore and her mind was being altered and poisoned.  The beautiful woman we all grew up with and loved was gone. Already.

I wish I had taken the time to have heart-felt long talks with my Mom during the point that she was still coherent, but I didn’t. I just could not face the fact that my Mom was leaving me. Avoidance was my only mode of survival so I could continue on and take care of my children. I couldn’t even begin to picture my life without my Mom, so I didn’t.  I knew that if that outer shell cracked and accepted all of what was happening before she died, I probably would not be able to function. At all. I knew at that point many huge life changes were on their way, my marriage was over, my mom was dying, I was really not “employed” because I was a stay at home Mom, and I was speeding full force toward being a single parent, without the support of my Mom. I was going to be totally and completely alone, with two small children whom I loved with all of my heart. I remember having THAT talk with my Mom and she was extremely saddened by the fact that my children were going to be from a broken home. She begged me to fix that, change that path somehow, stay in the marriage for the children, but I just couldn’t. I could only focus forward and focus on doing what was necessary to get my children through losing their Grandma, a pending separation/divorce, moving out of our house, me going back to work full-time, them changing schools….it was so overwhelming that I could only focus on one day at a time or I would have had a total breakdown.

Every Mother’s Day, since we lost my Mom, the kids and I only celebrated simply, if at all. They would make me a card, maybe get me a small gift, maybe they would make me a bagel or toaster strudel for breakfast. But we never had big celebrations on Mother’s Day, nor did we attend any that we were invited to. I felt like I was robbed. I was too young, at the age of 31, to be without my Mom. What exactly was there to celebrate ? I hope my children know that Mother’s Day is a day to celebrate, but I would rather them surprise me with a card or a toaster strudel on a regular old day. Not a day that they feel they “must do something”. The constant pressure for kids to “do something” because the calendar says so doesn’t mean near as much as when my kids did something sweet for me on a regular day. THOSE are the days and moments I celebrate Mother’s Day quietly. There was a day Kyle came home with several beautiful flowers in his dirty little hands and rang the doorbell. When I answered the door, there he was, smiling and holding them out to me. I hurriedly pulled him in the house (loved on him and put them in water) – but I knew he had taken them out of a neighbor’s garden so it was a quiet celebration for sure ! Or after a pre-teenage fight with Morgan I would get letter after letter from her explaining her views, or apologizing, or asking me for forgiveness, or sometimes just a picture or a piece of gum taped to a handmade card. THOSE were my Mother’s Day precious memories and moments…and I have thousands of them. I treasure my children and I still thank God, all of the time, for lending me these two to raise for Him.

So here I am, on Mother’s Day, fighting breast cancer, just as my Mom did exactly 15 years ago. She was losing her fight that Mother’s Day, and mine is just beginning, so the perspective of today is somewhat different. But now I do know what it’s like to wonder if you will have the opportunity to even decide if you want to celebrate Mother’s Day next year. I know what it’s like to spend countless hours during the night worrying over what will happen to your kids if this battle is lost – maybe not next year – but in a few years. I know now what it’s like to really look at your parenting and see if you helped nurture the qualities and characteristics in your kids that will allow them to have a good life, a life filled with happiness, God, helping others, responsibility, good choices, success, and love. But mainly, on those nights, and days like today, I know  if/when I do lose this battle, in two years, six years, or twelve years, I will miss the daily Mother’s Day moments that my kids bring to my life. A call, a text, a joke, a donut, a letter, a smile, a facebook posting of support, Kyle knocking on the bedroom door in the late evening and laying on the bed with me to talk, the kids asking for advice or opinions. These are the  small ones, the ones that Hallmark does not inspire or pressure, the ones that come directly from the hearts of my two precious children.

I promise, Morgie and Kyle, that next year, on Mother’s Day – we will have a big old party! It will be big enough to make up for all of the Mother’s Days we quietly celebrated…I am not sure what it will be like, but you guys leave this up to me – and mark your calendars for Mother’s Day 2012 – for that day – you two are all mine….I love you both dearly !!!! And I wonder, as my Mom looks down from heaven, if she likes the job I did raising her two grandbabies. She missed most of their lives and I hope she can see them from her windows in heaven – I hope she is very proud of them – because I know I am ! That is what makes MY Mother’s Day happy this year. That and that alone

Free Resource for Newly Diagnosed Breast Cancer Patients

9 May

Free Resource PanelFree Resource Panel

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